First let me say that I apologize for not updating my blog sooner. Adjusting back to full time work, then 3 hours of PT/OT after work 4xs a week has taken some toll on me. It is great to be back into a new school year. After having been out an entire year last year...so much has changed!
My recovery remains status quo. My long arm incision opens up, my surgeon wraps it for a few weeks and then it closes. And then it will open up again... this recovery will be very long. Next week I will be starting Kenalog injection shots into the scar as well as laser treatments because I've formed a large keloid over part of the incision and if that is not broken up soon...I will not regain normal function of my wrist or arm! I hope this doesn't break my scar down so much that the whole thing unravels.
During some recent vitamin blood tests that I had, it was determined that I am lacking a lot more than just Vitamin C in my body. My doctor told me it is "unheard of " to have "no traces of ..." Vitamin B1 in my body. He said that just does not happen with a woman in the USA. Well...you're looking at her! (Great.....) I got Zinc, Vitamin B1, and Vitamin B12 shots at his office and we are hoping that boosts me up some. He did say that Vitamin C is not abosorbed unless B1 is present in the body so maybe that's been my problem? And why has it taken since 1999 to figure this out!?
My port is going to need to be re-evaluated soon. There has to be a better way of administering Vitmain C into my body than via this Hickman port in my chest. Ports just are not meant to be in for life. I have 2 lumps that are painful and growning around the port in my chest. My Vascular surgeon is not sure what it is...I will probably need another venagram under anesthesia within the near future to assess what they are.
It looks unfortunate although true that the Dr. at John's Hopkins has once again dropped off the face of the earth. This is the second and LAST time I will be going there (hear that Uncle Mickey) to have my hopes raised with his "I really want to help you antics" and then he disappears with not a trace of help. I recently emailed him and he said, "I will look into it for you..." and I never heard back. Very upsetting and frustrating to have hopes so high and than dashed. I'm over it.. I'm over him!
Baby Andrew continues to do well at home! He's growing, happy, and so much fun!
To be continued...
Stacy
Wishing you better all the time.
ReplyDeleteMy thoughts are with you.