Dear doctors...
What if someone came up to you and said "suck it up" ??
How would you feel if someone told you that you needed to wake up at 4am daily to do an infusion?
How would you handle having to tape your chest with Saran-Wrap 2x a day to be able to shower?
My guess is that you would not be happy, or accepting, and you might even feel weak. Because just like me, you are human too!!
So when you come to my bedside in the hospital (after I've already had 70 surgeries, do a 3 hour infusion nightly in my house, and wrap myself with Saran-Wrap daily) and tell me I MUST ADD another 3 hour infusion starting at 4AM....realize that I am like you. A human with feelings and a quality of life. Would you want to do that? You may think not but really, I am...just like you!!
Despite my medical challenges, I wake up daily, drive 45 minutes 1 way to work, and teach all day. I teach 3-5 year olds with disabilities and other challenges. And I love it. It's the only normalcy in my life. So doctors..understand that my only normalcy is important and needed for my quality of life. Work with me, talk to me, compromise with me. Please help me instead of saying, " This is your only option to live..."
REALLY????
I've tolerated 22 years of doing what the doctors have asked of me. But I just CAN'T do this!
Can you blame me???
Stacy
